Epoch and Eric have done their first job

chemo pouch

Today was finally the time for my lines to be removed as the countdown went on over the past four days. My progress has been good thanks to the good work of Epoch and his little mate in the pretty bag, Eric. No side affects as yet, but the platelets could suffer over the next couple of days of course, so they are keeping an eye out for changes there. Energy levels have already gone down, but I’m coping pretty well. I refuse to give up or give in.

I am free, for a short time at least, of lines attached to my PICC line and can walk without hanging onto a beeping trolley. I reckon these regulator machines have watched the movie Close Encounters of the Third Kind, because one alarm buzzes in one ward, and next thing, another alarm replies….then another joins the conversation and before you know it, there are about 5 or 6 of the darling things singing at the top of their non existent tonsils. Sometimes mine sits for a while in contemplation listening, and then decides he needs a bit of attention too, and joins in. I tell him to shut up – he takes no notice and yells anyway. Nurses eventually come running from all directions to re-set their little machines, but at night after 8pm it can be almost guaranteed the silence does not last long.

In a couple of hours though, depending on my next test results, I might be hooked back up to a saline drip, just to be on the safe side. Oh well, one line is better than 6 or 7.

The next few days I have to be super careful with rest and staying free of bugs, fever, and all those horrible things that lurk in dark corners. This morning I was a little dismayed to see a toddler wandering the hallways of the ward…no kids under 8 are allowed in here, and if they have any bugs whatsoever it’s a completely no go area. There are a lot of sick people in here who cannot afford to catch the common cold. He wasn’t about for long when the vigilant staff realised he was on the loose. I hope the parents got a good roasting.

Tim spent most of the day here with me and it was nice that we could just relax and enjoy the fact that Heffy has decreased so much over the past days of chemo, and it’s looking very hopeful indeed of getting rid of the monster for good in the not too distant future. I am thrilled to be able to lie down in bed properly at night to sleep instead of trying to prop my head up on the sides with pillows and my cushion from home.

count your blessings

For the time being Tim and I have decided not to worry too much about the moving out into alternate accommodation because on reflection of all that was said in a jumbled mess yesterday by the professionals, it may not happen. If it does happen, they have to give us a few days at least to set it in action as things need to be put in place for Tim’s work, never mind getting me sorted. Personally, I think with the risks involved of infections, it would be wise to stay put, but we will see what happens next week I guess.

My ward buddy Shari is suffering severe fatigue. She needs sleep. Today she was falling asleep while talking to her mother and thankfully, as mothers do, she urged her to close her eyes and have a snooze. She slept for 3 solid hours. Then visitors arrived. One was her sister-in-law who seems to have her finger on the pulse of getting business done. In the couple of hours she was here, this girl had sorted out Shari’s mobile phone bills, (including her young son’s), a birthday party was arranged for Shari’s eldest daughter, new clothes were selected online for the babies, and they looked up Shari’s disease online to learn more about what should be done.

Shari has been a little resistant to treatments, and won’t consider doing any trials etc. I agree to all these things because if a trial is going to help someone else down the track, that would be good in my opinion. The medication, future appointments and the general lay of the land for the future seemed to be a hazy aspect for both Shari and her mother until this girl got her phone out and had it sorted and written in a notepad for reference, asking the necessary questions of the doctor who visited, in next to no time.

My kind of girl. By the time she left this evening, I reckon Shari’s mind was far more at rest because she had a plan at last of what to expect, what to ask for and how to get help. She is sleeping soundly now although her phone keeps buzzing on her bedside locker…I hope it doesn’t wake her.

daisies in a pot

 

Well they have just attached a saline line to me so my kidneys don’t suffer in any way overnight. That is cool – not a problem. Better to be safe than sorry. Roll on the next few days of this crazy trek over bumpy roads, so I can continue to beat that slob Heffy.

Thank you all for hanging in with me. It might get a tad bumpier over the next days, but please keep your fingers crossed that no infections or fevers come my way. I want to remain squeaky clean and the top of the class!

I miss my home, my family, my fur babies, and of course Tim so very much but I am sure the stay here will be all worth the good result in the end. Patience is a virtue and I must be honest and admit it is not usually a strong one for me, but I’m cultivating it more and more each day. Your presence helps me with that too. My weird sense of humour helps too. Having my laptop and the internet helps too, lol.

Goodnight. Sweet dreams. Have a great day if you are on the other side of the world, and I send out my very best of wishes and hopes for Brenda who will be undergoing surgery in Wales over the next day or so. You will do very well Brenda and enjoy good health again soon. Much love. Big hugs.

daisy sketch

 

 

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4 thoughts on “Epoch and Eric have done their first job

  1. Gerri Bowen May 28, 2016 at 6:15 pm Reply

    Sounds like Shari’s sister helped her out enormously. Always good when you’re down and out in the hospital. I do hope you remain squeaky clean. Enjoy those machines when they decide to have a beep-a-long–but not after 8:pm. Waiting is so hard. Waiting for this test, waiting to see if this happens, if that happens… I’d say hang in there, but you’ve been hanging in there. Huffy will be defeated. I think it’s great the progress so far, Jo. Keep sparkling!

  2. Tina Jaray May 28, 2016 at 9:28 pm Reply

    Oh Jo, you are such an incredibly wonderful, brave girl. All my wishes are flying across the world to you. xxx

    • joskehan May 29, 2016 at 3:37 am Reply

      Thank you Tina. Hugs. xx

  3. joskehan May 29, 2016 at 3:36 am Reply

    I’m still sparkling Gerri. xxxx

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