It seems so long ago since I first blogged about the lump in my neck. So much has happened. The emotion, anxiety, fear, hope…..tests, medical terms to get one’s head around. An absolute whirlwind over the past couple of weeks. Friday the 13th was the day my doctor in Maryborough said I would need to consider malignancy possibilities and sent me off to the emergency of the Hervey Bay Hospital. My feet hardly touched the ground before I was here in Brisbane, with such excellent medical teams working on finding out what the big problem actually was.
Those of you who have followed this blog and my posts on face book, know the stress and utter confusion my family and I endured. There is no point in denying the fact that I was scared stiff, not knowing what the outcome was likely to be, while trying with all my strength to stay strong and positive the entire time. Now, I am at a little T junction of this journey, and all is looking positive and good. The sign posts are friendly.
The doctors have been and reported my blood cells are good, my marrow is doing what it’s supposed to do, and with the lump almost completely gone from my neck now, my appearance is almost back to normal. Almost. As I told my sister on the phone today, I’ve aged. My hair looks like an old woman’s and has lost it’s colour and oomph for starters. Small sacrifices as far as I am concerned.
The accommodation has been sorted I believe, ready for my move tomorrow morning. My sister Bernice is coming down to be my carer and says she can stay for a month or more at least, so that is very comforting for me. Tim will be coming down still on weekends to visit, and it all depends on the actual bedroom situation of the unit as to what happens with that.
So all is good there. I will post pics of our new residence when we get settled. Apparently it is just down the road a very short distance from where I need to go for my appointments, so that is truly a blessing.
Today I went to the Patients’ Lounge for a cup of hot tea and a break.I got the hot cup of tea, but not the break. A mother of a patient was in there doing a jig saw puzzle and she was ready to chat. An English lady who came out to Australia nine years ago for some sunshine, she bought a cottage and settled in the little township of Dingo. I don’t recall ever visiting this town, but it sounds a bit hot, dusty and remote to me. Her daughter followed her out and then early this year was diagnosed with a blood cancer that is rife among younger women. She has had several bouts of chemo and also a stem cell transplant done, which is the reason she is in this ward currently. I wish her well.
My new ward buddy, Val is a nice lady who has suffered breast cancer for the past 8 years. Last night she was brought in with severe vomiting. She looked surprisingly well this morning although tired. Her friends came to visit and they promised to bring her some vodka ice blocks because she is fluid diet only. Their support and laughter was heart lifting to hear. Her stoic acceptance of what comes her way every now and then is nothing short of mind blowing.
So tomorrow is the new frontier yet again. New surroundings, new people to get accustomed to. On Thursday, I’m due in the outpatients’ clinic for a top up of IV drugs to ensure Epoch and Eric keep on doing what they have already done. The doctors also informed me today I’d be self injecting a drug each day as well….not really looking forward to that. As I said to Tim the other day, after getting so many injections in my stomach, I have a huge respect for his ability to do that several times a day without flinching. The purple bruises on my stomach is a bit of a game for the nurses who try to join the dots.
Goodnight everyone. I feel the first chapter has come to an end and the next chapter is going to be even more positive and interesting the further we delve into it. Thank you all once again for sticking by me. Words cannot express my sincere gratitude.
Much love and big hugs to all.