I am sure you all remember my trusty friends Epoch and his little mate Eric who lived in this cute little bag while I was in hospital. Combined they are a force to be reckoned with and did great work first time round. Well, this chemo course has added another Top Gun to the mix and I’ve called him Oscar. Tonight I have a rather colourful bag hanging round my neck, which is home to both Eric (for 90 odd hours) and Oscar (for 24 hours). I have every confidence these little bros will do their work well and wipe that lazy Heffalump out so smartly that he won’t want to crawl back.
Today I was meant to have the lumbar puncture as well, but the specialist nurses were concerned about the timing. When the procedure has been done, one has to lie flat for a certain amount of time to minimise any injury that could occur due to the puncture of the spinal area, and with the chemo taking 4 hours, there just would not be enough time. The appointment was changed to tomorrow morning, followed by a consultation with the doctor. My one day off from the hospital no longer exists, but that’s no biggie. The staff are all so lovely and make one feel so welcome, complaints are not justified in any shape or form.
On the subject of complaints, we have had a few unpleasant experiences with taxi drivers over the past few days. The first guy was extremely nasty about the shortness of the trip, despite the warning I gave him before we got into the cab. He snarled at my sister when we arrived because it was less than $5….he told her he can’t live on that amount a day. Bernice tried to hide the fact she was upset and hurt. I think I must be a bit more hard hearted or street wise than she is, because it didn’t worry me at all…my comment was (typically me by the way), ‘Up his arse.’
Then on a trip back to the unit another complained about the shortness of the trip, but he soon decided that at least it was worth laughing about. We parted on reasonably good terms. This morning was the worst. We rang as always for the cab and he was there pronto. I warned him as I opened the door that it was just round the corner and across the street to the main entrance of the hospital. He nodded. His mood changed however, when it came time for my sister to pay and he was rather nasty about it all. By that time I was standing on the pavement having a breather while she paid. I could tell from her face that he had been an arsehole to her.
My specialist nurse chatted to Bernice about it this afternoon and she suggested one of us tell the next nasty cabbie that I would love to swap places with him any day of the week..he can take my place having the treatments etc and I’ll happily take the $5 fares. I feel ready for the next nasty pasty so God help he who dares the rudeness next cab trip. You can call us all racist if you wish, but it was unanimously agreed it was an Indian thing and totally unacceptable. Cab numbers are now being recorded in case we decide to lodge a formal complaint to the company.
To round it off though, the young cab driver tonight could see I had been through the mill today and he was so lovely, caring and polite. The total opposite to his colleagues. Yes, and he was an Indian! They are not all the same and we all must remember this.
So in the meantime we have 2 house guests working their magic 24/7. They are heavy to carry around but that is a small price to pay knowing my good health is just another step closer. Good on Eric and his bro Oscar….fine young fellows indeed.
On a very happy note, Tim will be down tomorrow for a few hours. We have the inevitable paperwork to be signed etc, and with Australia Post being so slow these days, it’s safer and quicker for him to take the 3 hour or so drive to collect it all personally. The bonus is seeing him again sooner than usual.
My hair has almost all gone. Just a few determined wispy bits hanging on…so annoying too. I want them gone. Now though I can wear my scarves which I knot in various ways to keep them on my head. It’s fun creating different looks. Bernice is busy crocheting hats for me as I said in my last blog, so I’m looking forward to having those to wear too. They are beautifully soft both in touch and colour. Such a talented lady.
Personally I am gaining so much from this whole experience. My faith in my fellow humans has been restored mega-fold (is that a word?), from the love, caring, inspirational motivation, help, positivity and just ‘being there’ by my husband, my family and friends. Friends I know personally and those wonderfully supportive friends I have met on face book and who are so genuine I cannot help but strive to get back to 100% health so I may enjoy our friendships and chats for many years to come. I thank you all from the bottom of my heart.
Tomorrow is part two of today and although not a pleasant thing to have done, it will tell the doctors how well the treatment is working, or not. I don’t envisage any hiccups.