Eric and Oscar are probably partying this very minute now they are free of the tubes in my veins after a full week of hard work. Of course Oscar had to mar his good behaviour record on Friday morning at 4am and set off his alarm….how rude! He wanted attention.
Usually I can fix him with pressing a couple of buttons, but no, this time he wanted a code which I didn’t have. So an early morning trip to the Ward 5C where I began my chemo journey was necessary, where one of the nice nurses reset it for me. It took a couple of minutes, and we were back at the unit within 30 to 45 minutes. Going back to sleep was not an option by then, so early breakfast was the order of the day. My appointment to have what I believed done, (disconnection of Oscar) was at 2pm. When I arrived the nurses informed me Oscar was set for a refill and other drugs were to be administered while I was their ‘captive’ for the next 3 hours. So Oscar was to be with me yet another night. Ho hum. I warned him to behave as soon as he was all set up.
However, while waiting for a bed to become available in the chemo ward, my sister and I chatted with 2 ladies in the waiting room. One was in a positive frame of mind, with no hair, happy smile and hopes for her future. The other was from Rockhampton, wearing a wig (although she claimed it was her own hair, but I’ve never seen synthetic hair growing from any head before in my life!), dressed to the nines, complaining of pain in her legs, head, lack of sense of smell and generally low energy. She and her husband had flown down for the day’s treatment and were due to fly back that evening. It was obvious Mrs High Maintenance didn’t want to fly back….she wanted to stay the night in a hotel and go buy some lingerie which she hadn’t brought with her. Sheesh!! This lady was a piece of work.
After listening to her negativity and whining for half an hour I decided to move over to the reception area to see if my chances of getting into the ward had improved. Just as I arrived at the desk my nurse for the day was at my side saying ‘Come with me little one’….I was never so pleased and willing to go to the chemo ward!
So last night both my sister and I were pretty beat by bed time. Tim arrived late in the day but this time he is here indefinitely as Bernice returns home on Monday and Tim takes over her duties as my carer. He arrived with his computer, printer, files and all sorts of other work stuff which has filled this tiny unit well and truly. We had to leave him to it and go to our beds before we fell over asleep on the spot where we stood.
Bernice was asleep within seconds – I have never seen a person sleep in the one position, so still, so quietly, for the entire night before. She doesn’t move an inch once she is asleep. I kind of envy her.
This morning we woke up feeling reasonably refreshed although my head was feeling a little fuzzy. The last day of the chemo affects I think. Thankfully Oscar kept his manners in check right up until we entered the hospital just before 2pm. The nurses could hear me coming down the hall way with Oscar beeping his objections and as we got closer Eric joined in.
A small dose of maintenance chemo was given along with a few other miracle drugs, and I was freed from the boys and could come back to the unit. Yaaay. It’s always a good feeling to not have that heavy bag of cads around my neck.
My next appointment for blood tests and doctors’ consultation is next Tuesday, then Thursday…so I have a relatively free week to recover from this round of chemo. All the results from the LP and blood tests of last week are excellent, I have had no nausea, no high temps, no infections, no constipation (it’s so embarrassing when they ask that question every day!!), no headaches…all in all I’m doing very well and I could not be more pleased with my progress at this time.
After my chemo yesterday, Bernice and I went to another level to the newsagent to buy our Lotto….we will win it and boy are we going to have some fun! I wandered around the shop which seems to stock everything from milk to jewellery, clothing to magazines and toys. It was fun looking at all the things on display especially the bling. When done, we headed down the escalators and half way down I heard someone calling out ‘There are my lovely ladies!’…..there is a Hair Salon at the bottom of the escalators and at the basin was the owner of The Jam Jar having her gorgeous blonde locks coloured pink. Rather pretty too even though I’m not a fan of those weird pinks, purples, blues and greens girls like to put through their hair lately.
We walked over to say hello. While chatting about hair, I mentioned I had some annoying wispy bits of hair still but hoped they would drop out with this recent dose of the good stuff. The young guy who worked there asked if he could shave it for me, so I accepted. I was further surprised to find they refused to take any payment for doing this fantastic job. Now I am totally bald. Well there is a slight fuzz on my head because he is not allowed to use a razor in case of small nicks which could result in infection. A few months ago a small nick or cut would not have been a problem in my view, but things have changed. A lot. I accept that and am living by the new rules.
Yesterday during my few minutes of the last of my energy levels for the day, I spent a very enjoyable hour chatting to my grandson Steven on the phone. He never fails to make me laugh and we share jokes (usually private in-house jokes), and of course we vent, we swear, and we discuss everything from shopping to politics, to family and the animals. It is never a dull conversation and we don’t run out of things to say. Indeed the only reason the call ended was because he was due to get ready to go to work. I don’t know what I would do without my Steven.
Tomorrow will be a good day to chill out and relax. We are expecting storms here in Queensland…they are heading our way right now, and Alice Springs in the middle of the country has heavy hail and rain like they haven’t seen in years, if ever before. These storm fronts are moving east and flooding and heavy rains are promised for Sunday. Hopefully they will have passed by the time Bernice has to fly home to Gladstone. I don’t want her to have a rough flight…those planes are not the big ones and can be bumpy at the best of times.
Tim and I will take her to the airport of course on Monday, and there will be tears for sure. We have a date with the Jam Jar girls for coffee first, and there will be tears there too as they have become such good friends in this short space of time. Monday night I will write my next blog and it could be soppy, so I apologise in advance. I will miss her more than I ever imagined. Our time together has been good for both of us. …in many different ways.
Goodnight everyone. Keep smiling and be kind to each other. Life is good and should be lived well each moment of every day. My gratitude always for your support, love, inspirational messages, encouragement and motivation….it helps make this trek of mine a little easier and happier. Thank you. Much love and big hugs to all.