I said farewell to Eric and Oscar yesterday as planned. Oscar’s schedule was topsy turvy though and didn’t coincide too well with Eric’s which necessitated a second trip a few hours later to have him disconnected. It’s nice to have my neck free of the heavy bag of cads though. Next visit from the boys will be around the 26th of this month.
My review with Emma on Friday was very pleasing. She reported the LP results showed no more extra cells in the marrow or surrounding areas which would hopefully indicate they have stayed away from the brain area as well. The blood tests are all showing excellent results and no less than what is to be expected at this stage. Of course this will change over the course of the next week as soon as I start those injections this afternoon. My white cells go haywire and my energy levels sink rapidly. As I have said before though, experience is power and we now have a few ideas on how to help avoid the downward trend being as nasty as it was last chemo course.
Scans are booked for the next couple of weeks, which will show if there is anything to be concerned about in the brain area, and I have an appointment with Kirk Morris the consultant…I call him Captain Kirk on the 12th July. I’ll have to look for some Star Trek cuff-links or something for him I reckon…it might give him something to smile about. He always seems to be in such a rush. Captain Kirk is very straight down the line and doesn’t entertain any bullshit which is what I like in a doctor, lawyer, tax agent and policeman. Be honest and straight is my motto. So I’m hoping he has good news also and that Emma and Katie haven’t just been saying nice things to make me feel happier about my trek.
By the way I love these quotes from the Little Church Mouse, don’t you?
I’m feeling quite happy with my progress and am always hopeful and positive about the eventual outcome. I know I can beat this thing. When I think back to the first weeks and how terrified I was due to not knowing what to expect or what might happen, I shudder.
I consider myself so lucky compared to others I know of and have met. A family member’s mother has been suffering from a similar condition for some time now and for some reason she was treated with radiation. It doesn’t seem to have worked as well for her and from all reports the eventual outcome is not bright. This lady has been a hard working, kind, loving lady and mother all her life and has had enormous struggles over the years…she does not deserve to be ill in this way. I hope she is pain free and surrounded with the love of her family.
During this past week on the Oncology ward, I met up with Sharleen from Ward 5C. I had been thinking about her and even mentioned the fact to Bernice when she was here as I hadn’t seen her for some time.
Tears sprang to my eyes when I saw her lying on the bed having her treatment…her lovely Dad by her side while her sister in law went for coffee. Sharleen has gained a lot of weight because of the steroids she has to take, and maybe the chemo and her condition too. Her beautiful long and lustrous black hair has gone; her pretty face is swollen. Her smile is still bright though and the positivity is slightly dimmed I think, but she has a huge battle in front of her. I feel for her so much. We held hands and spoke, but I had to leave before the tears rolled down too freely. Life can be so unfair.
On a cheerier note, Tim’s cousin’s husband who has been suffering this disease for some time also, is now on chemo maintenance programs and is almost in remission which is wonderful. I can’t wait to get to that point myself so we can be at home again and visit Brisbane for the monthly maintenance dosages. When remission is declared, I think I’ll chuck a party!
Tim is getting better at this caring gig. He still puts the kettle on for a cup of tea and then forgets to make it, so the kettle has to be reboiled. He cooks meals with his usual aplomb though and ensures I have iced water to drink to keep the fluids running. The washing up seems to be a constant interruption to his work commitments, and the washing and drying of clothes drives us both nuts. Being such a small unit the washing machine and dryer noises echo round the walls and they seem to drone on for so long for such little machines! My clothes, towels etc have to be washed daily because of this chemo expelling cells continually, so it’s a daily head drain.
He has tried to keep friends and relatives updated when I am not able and last night he spoke to a friend we haven’t had the chance to even tell about my illness until now. I had been thinking of Myra for sometime but never had either the energy or time to even get an email to her which is rather neglectful on my part. Recently I updated a long time friend at last because she and I share birthdays in the same month. I felt very blessed to receive a reply a few days later from Jean. This all proves that true friends will always be there for you in the not so good times, no matter what, and that they understand things get in the way of communication at times. I am very grateful for that.
I’m not sure when my next blog may be written…it depends on my blood levels over the next few days and how I cope. If I have anything to do with it, all will be fine, but at times control is not within our grasp. I will rest when I have to. Until next time, stay happy, be safe, be kind. Try to ignore all the terrible things happening in the world and look for the good things. Thank you all again immensely for your support, love and messages. They are my life blood right now and keep me smiling, positive and hopeful.