Captain Kirk…hero or villain?

beam me up scotty

The reason for my heading has nothing dire in the meaning. It’s just that he (Kirk Morris my consultant – the head honcho), has ordered all these scans, x rays, tests and biopsies including a PET biopsy which as I remember rightly was the very first initiation into these scary type tests in my first week here. It was made pleasant enough by the lovely radiologist registrar but boy  it was nerve wracking.

My appointment was early with Kirk – 8 am – I should have still been in bed! He was running late – probably his turn to do the school run on the way to work – but it was nice to see him again after many weeks. He is pleased with the results and my progress and says I’m doing very well. He is sure that by the end of the 6th course of chemo at least 75% of the bad cells will be gone. I’m kinda hoping for more….am I too greedy? Of course the maintenance course will eradicate what ever is left, so I’m pinning my hopes on that being a very small amount to deal with. Kirk was non-committal about just when I might be able to go home and come back fortnightly or monthly and I accept that. Early days as they say.

biscuits

Kirk needed a blood test to be done so his view of the current results could be complete…this meant at least two hours to wait for those results to get to his computer. I was so tired I ended up going to sleep sitting up in the waiting room and was woken by Kirk standing in front of us to let us know the tests were all good and I didn’t need a blood transfusion at this time. I’m not really sure what we are doing right, but I’m pleased that my blood count recovers well enough without the transfusions….so many of my fellow patients have them on a weekly basis. Do they not eat good food? Perhaps they are just unlucky with their blood cells.

When we got home I collapsed in bed and slept for most of the day. Sleep, rest, lots of fluids, good food when I can handle it, and watching positive type shows on telly when I can be bothered, or reading my current book – all seem to be part of the recipe to staying on top of this thing.

In the next couple of weeks, appointments have been made for scans etc as I mentioned before. Some are at 7.30am…..are you kidding me? Such an early start but it doesn’t guarantee an early finish to the day. Most of them will be all dayers apparently, with a few hours waiting here and there. It’s the waiting that exhausts me. The first day is for Friday 22nd for blood tests, LP, bone biopsy (they hurt), CAT scan, and other xrays. If I opt for a sedative for the bone biopsy, I will need to fast….the up side of this though is that I’ll be made to lie flat on my back for a few hours, so maybe I’ll snooze while waiting for the next thing. Interesting times ahead.

believe (2)

On a trivial note, I’ve been reading a book my in laws gave me, called The Aviators. I have slowed down in my reading since this illness, but after finishing the book I arrived with, I began this one. I have learnt so much about the WWI and WWII from this book…it’s written in a very interesting way and has a full history of the early air men including Eddie Doolittle (he led the bombing of Japan, yay Eddie!), the Lindberghs and the kidnapping of their son. I have about 1/4 of the book to read yet, but it’s a good read.

the Aviators

On another note of trivia, Tim has the sniffles and sneezes and we are really hoping it’s just a sinus thing and not a cold. I can’t afford to have a cold right now. He went off to buy all sorts of medication this morning as well as masks for him to wear. I have sat near people at the hospital who have been sniffing and snorting and carrying on (sometimes I am so tempted to glare at them!) and not caught a bug yet, so here’s hoping. It will set things back by weeks if I end up coughing and spluttering.

Until next blog, take care, keep smiling, be kind. Much love and big hugs.

it's a good day

 

 

 

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10 thoughts on “Captain Kirk…hero or villain?

  1. Trevor Belshaw July 13, 2016 at 7:10 am Reply

    thanks for the update, Jo. Hope you manage to keep the cold at bay.

    • joskehan July 14, 2016 at 10:08 am Reply

      No sign of a cold so far….fingers crossed. xxx

  2. ursula dewar. July 13, 2016 at 9:49 am Reply

    All sounds to be going well for you which is good to hear even though you are so tired as a result. God is good and I have no doubt that he is helping in every area you are subjected to.. Goodnight, God bless and love from me. xxxx

  3. Fran Macilvey July 13, 2016 at 1:05 pm Reply

    Thank you for your lovely, considered posts. I read them and feel the world is a better place already. ((xx))

    • joskehan July 14, 2016 at 10:07 am Reply

      Thank you Fran, you are a kind friend. xxxx

  4. Gerri Bowen July 13, 2016 at 3:15 pm Reply

    More good news. Good! I believe because you express everything that’s going on with you, good and bad, your thoughts about all, is helping you. Maybe those other who aren’t doing as well keep it all in, and there it stays. Keep sparkling Jo!

    • joskehan July 14, 2016 at 10:06 am Reply

      Yes, you might be right! xxx

  5. Doreen July 16, 2016 at 9:13 am Reply

    So far so good Jo. Whatever you’re doing it’s working for you. Whether it’s resting, reading, writing and eating well, it’s all important in your recovery. As well as your courage, resilience and determination which you have in abundance. I do hope Tim’s sniffles disappear quickly. Luv, hugs and healing Dxxxxx

    • joskehan July 16, 2016 at 10:24 am Reply

      Hi Doreen, we think it may be hayfever that Tim has….no cold which is good. My temp has been spiking over the past couple of days since the transfusion but I think that’s pretty normal….not high enough to go rushing to the hospital. xxxxx

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