The reason for my heading has nothing dire in the meaning. It’s just that he (Kirk Morris my consultant – the head honcho), has ordered all these scans, x rays, tests and biopsies including a PET biopsy which as I remember rightly was the very first initiation into these scary type tests in my first week here. It was made pleasant enough by the lovely radiologist registrar but boy it was nerve wracking.
My appointment was early with Kirk – 8 am – I should have still been in bed! He was running late – probably his turn to do the school run on the way to work – but it was nice to see him again after many weeks. He is pleased with the results and my progress and says I’m doing very well. He is sure that by the end of the 6th course of chemo at least 75% of the bad cells will be gone. I’m kinda hoping for more….am I too greedy? Of course the maintenance course will eradicate what ever is left, so I’m pinning my hopes on that being a very small amount to deal with. Kirk was non-committal about just when I might be able to go home and come back fortnightly or monthly and I accept that. Early days as they say.
Kirk needed a blood test to be done so his view of the current results could be complete…this meant at least two hours to wait for those results to get to his computer. I was so tired I ended up going to sleep sitting up in the waiting room and was woken by Kirk standing in front of us to let us know the tests were all good and I didn’t need a blood transfusion at this time. I’m not really sure what we are doing right, but I’m pleased that my blood count recovers well enough without the transfusions….so many of my fellow patients have them on a weekly basis. Do they not eat good food? Perhaps they are just unlucky with their blood cells.
When we got home I collapsed in bed and slept for most of the day. Sleep, rest, lots of fluids, good food when I can handle it, and watching positive type shows on telly when I can be bothered, or reading my current book – all seem to be part of the recipe to staying on top of this thing.
In the next couple of weeks, appointments have been made for scans etc as I mentioned before. Some are at 7.30am…..are you kidding me? Such an early start but it doesn’t guarantee an early finish to the day. Most of them will be all dayers apparently, with a few hours waiting here and there. It’s the waiting that exhausts me. The first day is for Friday 22nd for blood tests, LP, bone biopsy (they hurt), CAT scan, and other xrays. If I opt for a sedative for the bone biopsy, I will need to fast….the up side of this though is that I’ll be made to lie flat on my back for a few hours, so maybe I’ll snooze while waiting for the next thing. Interesting times ahead.
On a trivial note, I’ve been reading a book my in laws gave me, called The Aviators. I have slowed down in my reading since this illness, but after finishing the book I arrived with, I began this one. I have learnt so much about the WWI and WWII from this book…it’s written in a very interesting way and has a full history of the early air men including Eddie Doolittle (he led the bombing of Japan, yay Eddie!), the Lindberghs and the kidnapping of their son. I have about 1/4 of the book to read yet, but it’s a good read.
On another note of trivia, Tim has the sniffles and sneezes and we are really hoping it’s just a sinus thing and not a cold. I can’t afford to have a cold right now. He went off to buy all sorts of medication this morning as well as masks for him to wear. I have sat near people at the hospital who have been sniffing and snorting and carrying on (sometimes I am so tempted to glare at them!) and not caught a bug yet, so here’s hoping. It will set things back by weeks if I end up coughing and spluttering.
Until next blog, take care, keep smiling, be kind. Much love and big hugs.