Interesting times ahead

breathe life

Well since my last blog quite a lot has taken place. I had the new PICC inserted and because this is a training hospital, there is a good chance the person performing the procedure is doing it for the first or second time. I have been lucky in the past and have had very experienced doctors, radiographers and so on, but this time I lucked out and this kind looking Muslim gentleman appeared from behind the computer room. It was soon obvious he had done maybe one before and needed direction from the registered nurses working there. These ladies are very experienced and could do it blindfolded I’m sure. To cut a long story short, it bloody hurt! At least it’s working well though.

The amount of chemo in my body had to be passed via the kidneys, so I was watched like a hawk by the staff, and had lots of IV fluids…..this resulted in the retaining of fluid, so drugs were given to drain that…..this resulted in my running, and I mean running, to the loo every 15 – 30 minutes round the clock. Tiring to say the least. Tonight I’m still tired from lack of sleep, but the problem has eased at last. I was even given a few hours off the IV today, which is wonderful after being tethered for days on end. A shower minus the drip and pole is freedom indeed.

Infections have cleared and no new ones have surfaced as yet. I had an LP last week which was horrendously painful and the nerves of my left leg were given a good poking as well. That made me wake up believe me, although the sedatives didn’t seem to be working for some reason. I was given 4 times the amount I was supposed to have but they still didn’t knock me out. I have another due tomorrow, so I hope there is another pain/sedative management plan in place!

As I mentioned before, Nick suggested the stem cell harvest method to an implant and ultimately a cure for this bloody disease. I’ve had visits from the brilliant ladies who manage this side of things, and have a schedule for the first part of the procedure. The collection begins on 21st November, and although it’s arduous and I’ll be hooked to a machine for 6 hours each time they harvest cells, I am rather excited with the prospect and looking forward to kicking this thing once and for all. I will have quite a few months where I will have to stay away from shopping centres and anywhere there is likely to be large numbers of people, to avoid infections at all cost.  In between time, I might be allowed to go ‘home’ for a couple of days. I still haven’t seen the townhouse we’ve moved to.

Tim has made friends with the resident cat, and there is a fat opossum who sits on the roof…we’ll be giving him fruit to snack on!

possum

My fingernails have worsened and in spite of long periods of filing they remain a huge problem when dressing etc, catching on everything. My two big toenails are looking a bit worse for wear too thanks to the Epoch chemo. They too will have to grow out eventually.

So until next time, take care. Much love and big hugs and many thanks for being here for me. The very best of wishes to the Kiwis suffering the earthquake after shocks. I’ve been in a couple of earthquakes and they are terrifying. Stay safe everyone. xxxx

good-friends

 

 

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18 thoughts on “Interesting times ahead

  1. Trevor Belshaw November 15, 2016 at 9:49 am Reply

    What a lovely positive post. 🙂 I hope we get plenty more of these over the next few weeks and months. We’re all right behind you Jo. Really looking forward to the news from the stem cell transplant. Goodbye Heffie forever, welcome normal life. Look forward to the next blog. Hope the LP isn’t as bad as last time and the guy perfects his PCC thingy procedure.

    • joskehan November 18, 2016 at 1:35 am Reply

      Trev the LP was pretty good because he knocked me out with sedatives, lol. I’m looking forward to the next part of my trek. xxxxx

  2. Matt Jansen November 15, 2016 at 10:44 am Reply

    Hi Jo,

    matthew was very lucky with his harvest. He only had to be hooked up once to the machine, because the drugs that he was given to boost his numbers worked exceedingly well. Hope this can happen to you as well. Matthews cells are now being held at the Royal Melbourne Hospital for when they may be needed. They can be held for up to 15 years.

    Stay positive and all our love and best wishes.

    Mary & Matthew

    • joskehan November 18, 2016 at 1:47 am Reply

      Thank you for this encouraging message. It’s a wonderful thought to know there is a solution for down the track when needed. xxxx

  3. Doreen November 15, 2016 at 1:03 pm Reply

    Good to know you still have stem cell as another alternative option. Very hopeful. Not sure why they use inexperienced medics on patients like yourself who get punctured much more often than most. Your courage is outstanding. I pray for the day you can be untethered and go home for a break. Feel sure you would quite happily be ‘incarcerated’ in your own home with your furry family and Tim to keep yourself free from germs. Be like a holiday after hospital. Prayers, luv, hugs and healing. Ever in my thoughts.Dxxx

    • joskehan November 18, 2016 at 1:33 am Reply

      Doreen I long for the day we can go back to Maryborough, even if it’s just for a week at a time. Hugs. xxx

  4. oldawg November 15, 2016 at 1:45 pm Reply

    Happy for your progress and positive stem cell approach they are taking. Big hugs and love to both you and Tim.
    John

    • joskehan November 18, 2016 at 1:32 am Reply

      Hugs to you too. Thanks for your support. xxxx

    • joskehan November 18, 2016 at 2:11 am Reply

      There seems to be a light at the end of the tunnel at last! Hugs. xxxx

      • oldawg November 18, 2016 at 4:52 am

        That’s great news Jo. Big hugs

  5. Gerri Bowen November 15, 2016 at 6:43 pm Reply

    Very upbeat blog and I’m sure your attitude is an absolutely positive thing, Jo. The new approach sounds very promising too. Keep your sparkle going, Jo!

    • joskehan November 18, 2016 at 1:28 am Reply

      Gerri I’m feeling quite excited about the next part of the trek. xxxxx

  6. Matt Jansen November 15, 2016 at 10:38 pm Reply

    Hi Jo,

    Just thought I’d drop you a line of encouragement from me, as you probably know I’ve been through the the mill with similar treatment/if not the same as what you are experiencing and it is no picnic, lumbar punctures ect can be painful and difficult to endure when you are on the recieving end, anyway I just wanted to say that you are in my prayers and I have been reading your regular blogs! Hang in there and God bless…….

    Matthew Jansen.

    • joskehan November 18, 2016 at 2:03 am Reply

      Thank you Matthew. It was your willingness to fight and to try everything possible that gave me the inspiration to fight too. Here’s to us!! xxx

  7. The Creative Girl November 16, 2016 at 7:58 pm Reply

    Happy to hear that there are other options. Sending you loads of love Mumma Jo!

    • joskehan November 18, 2016 at 1:45 am Reply

      Right back at you sweet girl. xxxx

  8. ursula dewar. November 17, 2016 at 2:06 am Reply

    Hello Jo, was good hearing from you this morning. It seems you have quite a program ahead of you but no doubt you will cope okay. All is quiet and uninteresting here as usual so will close. God Bless you as I know that he does and will love and prayers from me. xxxx

  9. joskehan November 18, 2016 at 1:27 am Reply

    The next few months will be busy with new treatments etc, so it will be a different kind of trek.
    Much love. xxxxxx

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