Well since my last blog quite a lot has taken place. I had the new PICC inserted and because this is a training hospital, there is a good chance the person performing the procedure is doing it for the first or second time. I have been lucky in the past and have had very experienced doctors, radiographers and so on, but this time I lucked out and this kind looking Muslim gentleman appeared from behind the computer room. It was soon obvious he had done maybe one before and needed direction from the registered nurses working there. These ladies are very experienced and could do it blindfolded I’m sure. To cut a long story short, it bloody hurt! At least it’s working well though.
The amount of chemo in my body had to be passed via the kidneys, so I was watched like a hawk by the staff, and had lots of IV fluids…..this resulted in the retaining of fluid, so drugs were given to drain that…..this resulted in my running, and I mean running, to the loo every 15 – 30 minutes round the clock. Tiring to say the least. Tonight I’m still tired from lack of sleep, but the problem has eased at last. I was even given a few hours off the IV today, which is wonderful after being tethered for days on end. A shower minus the drip and pole is freedom indeed.
Infections have cleared and no new ones have surfaced as yet. I had an LP last week which was horrendously painful and the nerves of my left leg were given a good poking as well. That made me wake up believe me, although the sedatives didn’t seem to be working for some reason. I was given 4 times the amount I was supposed to have but they still didn’t knock me out. I have another due tomorrow, so I hope there is another pain/sedative management plan in place!
As I mentioned before, Nick suggested the stem cell harvest method to an implant and ultimately a cure for this bloody disease. I’ve had visits from the brilliant ladies who manage this side of things, and have a schedule for the first part of the procedure. The collection begins on 21st November, and although it’s arduous and I’ll be hooked to a machine for 6 hours each time they harvest cells, I am rather excited with the prospect and looking forward to kicking this thing once and for all. I will have quite a few months where I will have to stay away from shopping centres and anywhere there is likely to be large numbers of people, to avoid infections at all cost. In between time, I might be allowed to go ‘home’ for a couple of days. I still haven’t seen the townhouse we’ve moved to.
Tim has made friends with the resident cat, and there is a fat opossum who sits on the roof…we’ll be giving him fruit to snack on!
My fingernails have worsened and in spite of long periods of filing they remain a huge problem when dressing etc, catching on everything. My two big toenails are looking a bit worse for wear too thanks to the Epoch chemo. They too will have to grow out eventually.
So until next time, take care. Much love and big hugs and many thanks for being here for me. The very best of wishes to the Kiwis suffering the earthquake after shocks. I’ve been in a couple of earthquakes and they are terrifying. Stay safe everyone. xxxx