At last I have made it to the townhouse! Each day there was a reason I could not leave the hospital, and on the day after the LP, they were still hesitant to say it was ok. The LP was painless because my dear friend and doctor Su Yan knocked me out before he even started. I woke up about an hour later feeling so relieved, and dying for a cup of tea.
Friday morning came around and Su Yan thought the Sat and Sun at the townhouse would be ok but I had to promise him to go back immediately if anything changed. A bag of blood later followed by fluids, and Tim was allowed to take me and the stuff I’d packed, home to the town house.
It is a much longer drive to the town house than it was to the unit at the Oakes. Most of the way is via a freeway, very uninspiring. The group of townhouses looks nice and tidy, and they have ramped pathways as well as the steps throughout the garden. The gardens are nicely done with hedging and trees and taken care of by two full time gardeners. Great job! The ground floor has the kitchen, lounge, office area, bathroom, laundry and bedroom. The second floor has more bedrooms and a bathroom,but to be honest I haven’t been up there as stairs and my legs don’t do well right now. There is a nice little area to sit at the front door – table and chairs there. Out the back is a nice little back yard with a clothes line (don’t have to use the dryer for everything) and it’s wonderful being able to feel the sun on my skin again.
At this stage I can’t be sure how long I will be here. I start the stem cell collection tomorrow with blood tests at 7.30am. I’m hoping my veins are deemed strong enough to cope with the 6 hours for a large needle inserted for the transfer of the cells. If not, I’ll be taken to ICU where a needle will be inserted either into my jugular (yeuck!) or my thigh area. It’s going to be a hard day, but I’m really looking forward to starting the next step. I need to kick this disease out and the sooner the better.
I am so thrilled and thankful that I have at least this chance….it seems a short time ago a couple of the doctors were advising me to consider going home to palliative care and accepting my fate. They were talking to the wrong person! No way will I give up willingly and lay down and die! As one of the young nurses asked recently with tears in her eyes, ‘What changed?’ and I replied ‘I did!’
A new bunch of trainee nurses started a couple of weeks ago, and they, like the bunch before them, are a delight. I often think of the sweet girls who finished in October….wherever they are and whatever they are doing, I hope it’s all going well for them.
People think they can understand and relate to how cancer affects the family and friends concerned as well as the cancer patient. Full comprehension of the situation is impossible for those on the sidelines. Little things like Tim having to do all the stuff I used to do – washing, cooking, bed making, cleaning and so on, as well as keeping afloat with his job and ensuring his clients are happy. That’s hard enough, but when I was in hospital for weeks on end, he felt a little left out of the loop every now and then. Being present for the doctors’ visits is difficult to schedule. The worry he suffers is huge. He has to ensure his own health is kept on an even keel, which is a worry for me as well. So it’s a vicious circle. Together, we will get through it. Your support by fb posts, messages, email, cards/letters makes it so much easier for us to cope. Thank you again from the bottom of my heart.