The townhouse

At last I have made it to the townhouse! Each day there was a reason I could not leave the hospital, and on the day after the LP, they were still hesitant to say it was ok. The LP was painless because my dear friend and doctor Su Yan knocked me out before he even started. I woke up about an hour later feeling so relieved, and dying for a cup of tea.

all-you-need-is-tea-and-warm-socks

Friday morning came around and Su Yan thought the Sat and Sun at the townhouse would be ok but I had to promise him to go back immediately if anything changed. A bag of blood later followed by fluids, and Tim was allowed to take me and the stuff I’d packed, home to the town house.

It is a much longer drive to the town house than it was to the unit at the Oakes. Most of the way is via a freeway, very uninspiring. The group of townhouses looks nice and tidy, and they have ramped pathways as well as the steps throughout the garden. The gardens are nicely done with hedging and trees and taken care of by two full time gardeners. Great job! The ground floor has the kitchen, lounge, office area, bathroom, laundry and bedroom. The second floor has more bedrooms and a bathroom,but to be honest I haven’t been up there as stairs and my legs don’t do well right now. There is a nice little area to sit at the front door – table and chairs there. Out the back is a nice little back yard with a clothes line (don’t have to use the dryer for everything) and it’s wonderful being able to feel the sun on my skin again.

At this stage I can’t be sure how long I will be here. I start the stem cell collection tomorrow  with blood tests at 7.30am. I’m hoping my veins are deemed strong enough to cope with the 6 hours for a large needle inserted for the transfer of the cells. If not, I’ll be taken to ICU where a needle will be inserted either into my jugular (yeuck!) or my thigh area. It’s going to be a hard day, but I’m really looking forward to starting the next step. I need to kick this disease out and the sooner the better.

be grateful for all you have

I am so thrilled and thankful that I have at least this chance….it seems a short time ago a couple of the doctors were advising me to consider going home to palliative care and accepting my fate. They were talking to the wrong person! No way will I give up willingly and lay down and die! As one of the young nurses asked recently with tears in her eyes, ‘What changed?’ and I replied ‘I did!’

A new bunch of trainee nurses started a couple of weeks ago, and they, like the bunch before them, are a delight. I often think of the sweet girls who finished in October….wherever they are and whatever they are doing, I hope it’s all going well for them.

People think they can understand and relate to how cancer affects the family and friends concerned as well as the cancer patient. Full comprehension of the situation is impossible for those on the sidelines. Little things like Tim having to do all the stuff I used to do – washing, cooking, bed making, cleaning and so on, as well as keeping afloat with his job and ensuring his clients are happy. That’s hard enough, but when I was in hospital for weeks on end, he felt a little left out of the loop every now and then. Being present for the doctors’ visits is difficult to schedule. The worry he suffers is huge. He has to ensure his own health is kept on an even keel, which is a worry for me as well. So it’s a vicious circle. Together, we will get through it. Your support by fb posts, messages, email, cards/letters makes it so much easier for us to cope. Thank you again from the bottom of my heart.

fairy-and-bunny

 

 

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16 thoughts on “The townhouse

  1. oldawg November 20, 2016 at 3:04 am Reply

    Big hugs Jo….best to Tim.

    • joskehan November 21, 2016 at 3:59 am Reply

      Right back at you my friend. xxx

  2. Kay Burnett November 20, 2016 at 9:20 am Reply

    Iit must be great to have some sun on your skin. Hope you cam keep blood tests to a minimum tomorrow. Your doing great. Big hugssss. Xx

    • joskehan November 21, 2016 at 4:00 am Reply

      The sunshine and fresh air is lovely. I’m enjoying my time away from the hospital. xxxx

  3. Trevor Belshaw November 20, 2016 at 12:03 pm Reply

    Enjoy the sun, Jo. Hope the stem cell transfer goes smoothly. Looking forward to the post that says, all clear. Sending huge amounts of positive vibes. Keep at it Gal, you’ll kick its ass soon.

    • joskehan November 21, 2016 at 4:01 am Reply

      Thank you so much Trev. I will happy when the all clear is announced too!! Hugs. xxxx

  4. Gerri Bowen November 20, 2016 at 8:55 pm Reply

    Glad to hear the townhouse sounds good, and that you actually had some sun! I do hope all goes well for you tomorrow. Maybe drink lots of fluids today? (((Hugs))) to you, Jo.

    • joskehan November 21, 2016 at 4:04 am Reply

      Another day for the injections, and I was given platelets this morning to help get the count up so they can begin the collection. Back to the hospital tomorrow for blood tests etc. Fingers crossed. xxxx

  5. Jan lawson November 20, 2016 at 10:34 pm Reply

    Hope the transplant goes well today Jo. Sending very big hugs to you both. Positive thoughts coming your way. Great to hear you enjoyed some sunshine on the weekend. Jan xx

    • joskehan November 21, 2016 at 3:58 am Reply

      My cell count is not big enough to do the collection, so maybe tomorrow. Good to hear from you Jan. xxxx

  6. Jan Brigden November 21, 2016 at 3:57 pm Reply

    So pleased you were able to go to the townhouse, Jo. Much love to you & Tim. I just read the above comments and hope that your cell count behaves itself tomorrow and you are able to start the collection process. I have everything crossed. Even my eyes!! 🙂 xxx

    • joskehan November 23, 2016 at 12:25 am Reply

      Lol Jan, don’t get a headache from the crossed eyes!!! Hugs. xxx

  7. Fran Macilvey November 22, 2016 at 1:29 pm Reply

    I suspect this sounds really corny, Jo, but I’m glad I read your posts and get strength from them. I wish you well with every step you take and every breath you breathe. (((xxx)))

    • joskehan November 23, 2016 at 12:23 am Reply

      Corny or not I’m just happy to know my blog is not boring and is appreciated. Yhank you Fran. Hugs. xxx

  8. Doreen November 22, 2016 at 4:15 pm Reply

    I do pray the stem cell collection will start soon. Having time away from the hospital, getting some sunshine and being in nature must be refreshing. Take care and good luck with the collection, hope it’s not too uncomfortable for you. Luv, hugs and healing Dxxx

    • joskehan November 23, 2016 at 12:24 am Reply

      Being away from the hospital is really wonderful and I’m enjoying every minute. I wish my legs were not so weak though! Hugs. xxxx

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