There are few things in life that are assured…. there will always be a beginning and always be an ending……
Many of of you have been with me on the road travelled with Heffalump and have read the many blogs written in the past about the trials and tribulations of this bastard of a disease and the trauma it has caused to me and my loved ones…..
As you will be reading this after I have passed and know it was written with the help of my darling husband Tim…. so forgive him if he has made some typing errors while trying to keep up with me and my words.
In the past month I have been from hospital to hospital with the troubles caused by Heffalump and then the little bugger the bleeder. I have worked on my strength and self health over this time finally getting to a position of static health so I can be home with my little Daisy, Chilli and Tim…… this has been my main focus while recovering as m the months of hospitals and so on have become intolerable, whilst I love the nurses and Dr’s I love my Tim and fur-babies far more.
The Pal-Care team seem to understand this better than one ever expected so as soon as it was possible I grabbed the first day pass made possible and turned it into a week end… so me not wanting to follow the rules as always..
I did however eventually go back to the hospital being welcomed with a chorus of naughty girl comments from the nurses.
So back in my single room for a few days before I convinced the team another day pass was needed….. after a few chats with the team another was arranged.
Well needless to say I made it a permanent pass by simply saying nope I am staying home! a very easy thing to do in my view as it is my time no one and no one was going to stop me.
Tim his Mum and Dad have been busy after my first day pass making the necessary changes to the house to accommodate like changing out the shower area allowing me chair access for showering (oh how i love the shower at home without time limits because of nurse shifts etc) finishing off the flooring adding little ramps at the door ways and son making it easy for me to move around…. I have been blessed with Tim and his parents making so much happen for me to be comfortable.
I am able to sleep in my own bed do what I want when I want and have all the help possible on hand….. never something I have been comfortable with but none the less when I need it they have come to provide it without hesitation.
Whilst writing this it is difficult to know how and when this disease will rear its ugly head again. I am determined to stave it off for as long as I can, beat it if I can but as I have said already who knows what will happen.
I have left it to Tim to add things in the event I pass sooner than later, it will be hard for him to cope in the beginning but as I have seen many of you have reached out to friend him on his page which gives me some more comfort that he will be ok in time with some of you bumping him along……
Now I guess if this is to be posted after I pass I better give some of my thanks to the many who have written special messages to me over the journey. I never imagined the number of people that would be reading my little blog and the journey it has taken me on over the time.
Your messages of support and encouragement have fed the fire to survive and without them I could have given up so long ago.
So many thanks to my Blog followers and FB friends for you support
love and big hugs
Jo Skehan xxxx